Send Holdin’ Out to Conferences!
Please consider making a donation of any amount to support the mission of Holdin' Out for a Hero: spreading awareness of Spina Bifida and building community!
Subscribe to Holdin’ Out for a Hero!
We’re NOT the stereotype…
Ads
Tags
abortion adoption art babies Bill Hemmer blog blogger caucus cause celebrity charity colbert conference Congress conservative disability events folic acid Frida Kahlo handicap health House of Representatives kidney liberal Lindsay Lohan Manhattan Miami New York City NYC politics pregnancy pro-life reform Russia shunt South Beach special needs Spencer Day spina bifida stephen surgeryJoin the Conversation! Login to The Forum
Let’s Connect!
Enjoy Some Spiffy Savings
Find Me!
Affiliations & Memberships
Author Archives: Laurita
Help Christian March for his Daughter
“Don’t walk in front of me; I may not follow. Don’t walk behind me; I may not lead. Just walk beside me and be my friend.” … Continue reading
Posted in Uncategorized
Leave a comment
Marissa Talks About Labels & Her Exercise Routine
Earlier this week, we had a guest post from Marissa Meleske, a fellow writer with spina bifida who hopes to get certified as a life coach. Marissa has been awesome in making a video as a follow-up to her post … Continue reading
Posted in Uncategorized
Leave a comment
What’s in a Name? Labels Matter
Guest post by Marissa Meleske Marissa Meleske, 25, went to high school and did a semester of college before, as she puts it, “life got in the way.” While she pays off her student loans, she remains focused on obtaining … Continue reading
Posted in Uncategorized
6 Comments
What it’s All About: The Community
Every year for about the past 21 years, as a member of the Spina Bifida Association of Central Florida, I’ve been invited to their annual Christmas/holiday party. Since we just had our first Walk-N-Roll for Spina Bifida in October, the … Continue reading
Posted in Uncategorized
10 Comments
Speaking Out for a Rare Breed: World Rare Disease Day 2012
For over the past two years, I’ve poured my heart and soul out to my readers about how truly frustrating it is that, in spite of the 166,000 Americans living with spina bifida, and no doubt thousands more across the … Continue reading
Posted in Uncategorized
8 Comments
The Sky is Not the Limit!
Guest post by Gabriel Bonano Gabriel Bonano is 20 years old, and attended Orlando Tech, where he studied digital video production. In his spare time, he enjoys filming and editing videos, playing video games, hanging out with friends and playing … Continue reading
Posted in Uncategorized
5 Comments
Growing Pains: Dealing with Central Precocious Puberty
If you have a child with spina bifida who is in their early years, you might think (or hope!) that this will be the most challenging time for him/her. The fact of the matter is, each developmental stage of life … Continue reading
Posted in Uncategorized
Leave a comment
Nothing Says “The Holidays” Like a Pre-Christmas Miralax Flush
Are you out of “original” Christmas gift ideas for those who have been in your life for a long time? Is a loved one stressing about “holiday season regularity”? Then, look no further for the perfect stocking– and stomach– stuffer! … Continue reading
Posted in Uncategorized
Leave a comment
This Week’s Rundown: Complexes, Courage, and Community
Just this past weekend, I wrote a blog post about an issue that has haunted me my entire life. I wrote it in maybe 15 minutes flat– and then hesitated to press “publish.” Once I read it to Mami (who … Continue reading
Posted in Uncategorized
3 Comments
Standing on my Own Two Feet
“In order to be irreplaceable one must always be different.” … Continue reading
Posted in human, spina bifida
12 Comments




















