It’s Never Too Early #RSVawareness #PreemieProtection

 

This is part of a sponsored collaboration with MedImmune and Latina Mom Bloggers. However, all opinions expressed are my own. 

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As many of you know, one of my greatest passions in life is raising public awareness of spina bifida and the challenges that affect people living with SB, as well as the accomplishments, talents, and abilities of these very people.

Along the way, I have become aware of so many other worthy causes, in particular other serious conditions and illnesses that also deserve awareness and publicity. It is in sharing information about these causes that I find great purpose.

November 17th is World Prematurity Day. (It’s actually the day after my birthday!)

With many wonderful awareness initiatives, walks, and fundraisers that now take place nationally, it’s awesome to see that much of the public is now more informed about the incidence of premature births.

What many don’t know about, however, is a disease that affects many premature babies– respiratory syncytial virus, or RSV.

It was the lack of awareness of spina bifida that encouraged me to begin writing this blog in the first place. And now, it’s the lack of awareness of RSV among parents that has compelled me to partner with MedImmune to share this vital, potentially life-saving, information. 

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RSV is a very common seasonal virus that affects nearly 100% of babies by the age of 2. 

Here are some fast facts about RSV and prematurity that  every parent needs to know: 

  • Each year worldwide, 13 million babies are born prematurely
  • 75% of parents don’t know the definition of prematurity (birth at or before 37 weeks gestation)
  •  Most pregnant women don’t ask their healthcare provider about the risk of delivering prematurely and the potential consequences of preterm birth for their child
  • Severe RSV disease is the leading cause of infant hospitalizations in the U.S., with approximately 125,000 hospitalizations and up to 200 infant deaths each year.
  • RSV season usually occurs from November through March for most of the U.S., but it varies regionally, and from year to year.

 

Most of the moms I’ve befriended or who befriend me on social media have a child with spina bifida. As pillars of strength and examples of grace and perseverance for their families, these women would do anything for their families, and it would break my heart to hear of one of their children falling ill with RSV, especially with everything else they already have to deal with because of spina bifida. 

This is why I feel it’s so important for me to share the symptoms and warning signs to look out for when diagnosing RSV. Parents, please be on high alert if your child exhibits any of these symptoms: 

  • Persistent coughing or wheezing
  • Bluish color around the lips, mouth, or fingernails
  •  Rapid, difficult, or gasping breaths
  • Fever (especially if it is over 100.4°F [rectal] in infants under 3 months of age)

There is no specific treatment for RSV disease, so prevention is your best bet. That being said, here are a few simple parents should take to help reduce the risk of your child getting RSV, particularly during high season, which is from November through March:

 

  • Understand the risk factors and ask your child’s pediatrician if your child may be at increased risk
  • Wash your hands and ask others to do the same
  • Keep toys, clothes, blankets, and sheets clean
  • Avoid crowds and other young children during RSV season

 

Yes, this information may seem very overwhelming, and I’m sure that it’s nothing that parents want to even think about. But, as the tired old saying goes, “it’s better to be safe than sorry,” and by taking the proper precautions, parents, especially those whose children have other health issues, will have one less thing to worry about. 

And it’s never too early– or premature— to take good care of our children!

For more information and tips, you can visit www.RSVprotection.com.

 

Social Good at Hispanicize 2014: Be the Change

Hispanicize 2014 took place in Miami from April 1st through 4th, and this year, the organizers stepped it up by demonstrating that philanthropy is alive and well within the Latino community and beyond.

On March 31st, I attended Social Media for Social Good Training for Non-Profits Serving Latino & Multicultural Communities, a half-day, pre-conference event, sponsored by Florida Blue and open to professionals involved with nonprofit organizations.

 

Nonprofit_training

 

The presenters were Alex de Carvalho, founder of Social Media Club of South Florida, as well as Regional Development Director at Constant Contact; Katherine Doble, publisher of Los Tweens and Teens and president of Siren Marketing; and Maricela Cueva, vice president of VPE PR.

The topics covered ranged from strategies for E-mail marketing to the most effective platforms and methods for engaging potential cause supporters using social media.

I personally found the training interesting and engaging, and it was packed with lots of resources for nonprofits and individuals alike.

 

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For this cause blogger, one of the most awesome moments of the conference was witnessing Cuban bloguera Yoani Sánchez receive a Latinovator award for her courage and relentlessness in informing the global public on what is going on in Cuba.

The writer and activist has been arrested several times, even beaten, for speaking up.

I was honored and privileged to have the opportunity to meet her last year, when she came to Orlando to speak at my alma mater, Valencia College. After she was interviewed at the Latinovator Luncheon, I got to attend the press conference and ask her a question! What an amazing opportunity. I was thrilled. :)

Yoani_y_yo

I couldn’t believe that Yoani Sánchez remembered me from the Valencia event! I imagine she meets hundreds of new people every week. 

Attending the Positive Impact Awards was yet another amazing opportunity to see social good up, close, and personal. It was also a wonderful time to pay tribute to many awesome Latinos who are making a huge difference in our communities– and in the world.

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I’m very proud to know Hispanicize Founder & CEO Manny Ruiz, and call him mi hermano. Congrats, Manny, on being given the key to the city of Miami!

By far, one of the most emotional moments during the Positive Impact Awards was seeing Hispanicize’s own Founder & CEO, Manny Ruiz, be surprised onstage by being presented with the key to the city of Miami by none other than the Mayor of the City of Miami, Tomás P. Regalado.

I actually had tears in my eyes, watching Manny choke up as he thanked everyone for their support. 😉

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Manny Ruiz gets emotional upon being awarded the key to the City of Miami. Love it!

Even early on in the evening, on the red carpet, I was able to say hello to a few familiar faces…including this one:

EdwardJamesOlmos_and_Me

Oh, you know, just hanging out with my friend Edward James Olmos! 

I was so thrilled that actor Edward James Olmos remembered me from last year, when I attended the premiere of “Filly Brown” during Hispanicize! Eeek!

But that wasn’t my only “geek-out” moment of the night. For reals. Yolanda Pagán, whose late husband Louis Pagán inspired the Positive Impact Awards, and I sort of improvised and tag-teamed that evening during the red carpet. It was a really sweet moment as I watched her glide gracefully from interview to interview and from photo op to photo op! Yoli and I have become very close friends ever since we met during Hispanicize last year, and I felt Blessed and honored to witness this shining moment for her.

Well, Yoli came over to me during the red carpet madness, and straight-up told me:

Maria Hinojosa wants to meet you.”

Jaw. Drops. On. Floor. 

“What!?” I gasped. 

“Maria Hinojosa,” Yoli repeated. “She wants to meet you.”

“Why?” I muttered breathlessly. 

“Are you seriously asking that question?” Yoli countered. 

Well…yes I am!  But, no matter. When veteran, award-winning journalist Maria Hinojosa asks to meet you, you ask when and where! 

So, I dashed over to where Maria Hinojosa was being photographed and fawned over. Then, she notices me.

Then, she addresses me.

She said she really wanted to meet me, and that I was an amazing blogger or something like that, but, truth be told, as is the cruel irony in most situations that you should have been taping– I remember very little of what was actually said because of how shocked I was. Understandably. 

But I do recall the million-dollar-moment, as I was basking in my 30 seconds of glory, Yoli watching me the entire time with a huge grin on her face. 

Manny walked over to us (to formally introduce me to Maria, I imagine) and puts his hand on my shoulder and says to Maria (I mean, are we on first-name-basis now!?):

“Laurita is one of the best bloggers in the country.” By this point, I’m fighting back the tears. 

And then Maria totally says, pointedly, to Manny: 

“I know! That’s why I wanted to meet her!” 

By then, whether I was still breathing was questionable. I think I had a pulse, though, because my heart was racing.

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Maria and me. New besties? Here’s hoping! 😉 

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George Torres, founder of the Positive Impact Awards, Yolanda “Yoli” Pagán, wife of Louis Pagán, and Manny Ruiz pay tribute to Louis’ legacy. (Doesn’t she look stunning?)

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Some of the Positive Impact Awards honorees share their moment of triumph onstage. 

I fear I’ve already made this post too long, but I have to share about the panel I spoke on, on Friday! My dear friend and hermano, George Torres, a.k.a., “Urban Jíbaro,” asked me to speak on a panel titled “Hispanic Social Media for Social Good: Corporate Best Practices.”

SocialGoodPanel

(From left to right): Stephen Chávez, founder of Latino Foodie, moderated the #SocialGood panel, which featured George “Urban Jíbaro” Torres, founder of Sofrito Media Group, and Sofrifo for Your Soul, Steven Sánchez, Global Corporate Communications Manager for 3M, Sonia Díaz of Balsera Communications, and me. 

I have been fortunate to be a part of several dynamic panel discussions these past few years, and this one was no exception! Despite being the last day of the conference, and people showing up– *ahem*– at “Latino time” (there were parties every night!), I feel we had an amazing chemistry among our group, and we were able to engage with our audience members.

The best part was being able to tell my story, and hearing everyone else’s personal journeys through social good! I’ll be honest– I came away from this panel learning a lot! 

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With Yolanda “Yoli” Pagán, who is now one of BFFs! I can’t tell you how grateful I am for your support, encouragement, and many pep talks before and during Hispanicize! 😉


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With my longtime amiga, Alsy Acevedo of Catholic Relief Services, Anadel Alberti of Lanugo, and Yoli. Thanks so much, ladies, for supporting me and attending my panel! 😉

Later that day, after I recovered my nerves from speaking, I ran into Matt Wallaert, a behavioral scientist who works with Bing. He wanted to talk to me and introduce me to a group of young students with ASPIRA of Florida that he brought to Hispanicize, so that I could encourage them. Needless to say, I was at a total loss as to what to say to these kids! I have no idea how to foster and nurture young minds; I don’t know what you’re supposed to say to encourage them!

Well, when I saw Matt and a young friend of his, Chantal, they told me that they had attended my panel and that it was great! Matt had walked in with his group of students to watch/hear us! I was so incredibly moved by their show of support, and I realized that, when it comes to the next generation, all you have to really do is be there for them.

The week of Hispanicize was both too long and too fast. There were so many things I would have liked to do but didn’t have the time or energy to do. There’s just so much! That’s why I’m dedicating several posts, here, on Espresso con Leche, and on my hypeorlando blog, to covering everything I can.

By far, the most inspiring and uplifting moments of Hispanicize this year were the ones related to social good. Of course, it feels great to give, and it also feels wonderful to connect with others who are passionate about philanthropy within the social media space.

The best part of using social media for social good is that “the buck doesn’t stop here.” The donation or Tweet that you make, the photo you instagram, the blog post you publish about a cause can have so many impressions and can be shared so many times. Social media knows no boundaries or limits. Social media exists so that we can push our stories out beyond the natural, physical scope of older media channels.

And this week, I got to connect and reconnect with so many others who feel passionate about doing just that!

A hearty shout-out to the following sponsors:

  • Florida Blue, who sponsored the Social Media for Social Good Training for Non-profits Serving Latino and Multicultural Communities training
  • 3M, who sponsored the Positive Impact Awards, this year’s signature event, in addition to sponsoring and participating on our panel, Hispanic Social Media for Social Good: Corporate Best Practices.
  • Toyota Latino for being my sponsor during Hispanicize, and for inviting me to sit at their table during the Positive Impact Awards! I have so much more content to share about you guys, but for now I’ll say that you have truly demonstrated your commitment to social good in every initiative and program you design for consumers. Thanks for taking me under your wings! 😉

 

 

“You must be the change you wish to see in the world.” 

–Mahatma Gandhi

–Laurita ♥

It Takes a Village

That is, without a doubt, one of my favorite, perhaps overused, sayings. But, I’m a firm believer in its veracity.

I don’t think anyone was put on this Earth to “go it alone,” at least not entirely. If you reach out far enough, there is always someone there.

There has always been someone there for me– many people, in fact. 

For several years, one of those people has been Tracy Jensen. The mother of five beautiful boys, her youngest, Kumaka, has spina bifida. She and I connected on Facebook a long time ago, and since then, her stories about Kumaka’s strength, resilience and overall sense of adventure and humor have encouraged me during difficult times.

Through all of their challenges, Tracy has remained an exceptional mother, as well as a great encouragement to many families in the spina bifida community.

Many parents might raise an eyebrow and think, sympathetically, (and frankly, a little condescendingly), “I don’t know how Tracy does it.” And I’d be lying if I told you the thought hasn’t crossed my own mind more than once. What is most amazing about Tracy and her family is that they always take the time to support their community and involve their kids in great things. Kumaka is currently following in the tire tracks of the notorious Aaron Fotheringham, a WCMX (extreme sports for wheelchair users) pioneer and truly, the resident badass of the spina bifida community. 

While living on the west coast, Tracy and Kumaka also support and encourage Misty Díaz, a runner who has spina bifida and is raising funds to help kids and youth with disabilities compete in sporting events.

So you see, this is a very mutually nurturing community, and our paths often overlap. Now Tracy, the woman who does so much for all our community, needs our help. 

She has reached out– this time, across the globe– and fallen in love with a little girl named Sofi.

Sofi is four years old, lives in Eastern Europe, and she has spina bifida.

During the first two years of her life, Sofi was only bottle-fed and was rarely let out of her crib. As a result, her physical impairments are severe, as she has been deprived of achieving several critical milestones.

 

Sofi Rose

Still, her sunny disposition are encouraging signs that she will continue to improve, and she now lives in another orphanage, where she is thriving.

But, she needs a family, and a permanent, loving, safe home. And so, Tracy and her family are heeding this little girl’s call for help. They’ve decided to adopt Sofi, and bring her home to the U.S., where they will take excellent care of her, as they have for Kumaka and Sofi’s four other big brothers.

Since August 2012, the Jensen family has been tirelessly raising funds to offset all of the costs associated with Sofi’s adoption– the court fees, travel documents, airfare, hotel stays…the list goes on and on. Indeed, the expenses are astronomical.

The moment that they get to carry Sofi into their home will be priceless. You can’t quantify the value of a family’s love

This isn’t the first time I’ve shared my thoughts and heartache over orphaned children overseas who are living with spina bifida. All of the challenges that children face in an orphanage environment are multiplied many times over by the severity of the child’s condition.

In Sofi’s case, we know the sky will be the limit for her– once she comes home. 

In a classic race-against-time, the Jensens have been presented with the possibility of having her home with them for Christmas, but they can’t do this without our support. 

Please take a moment to visit Tracy’s donation site for Sofi and commit to giving $5, $10, $20, $25– any amount will help, and it all adds up. 

If you can afford that latte (ironic, since I’m typing this at my local Starbucks!), you can afford to help bring Sofi home. 

In Tracy’s own words, “We may be on this journey to adoption because we feel led to bring Sofi home, but you all are on our journey too…you are all part of the steps to bring our girl home.”

I feel privilege to be part of the “village” that wants to help bring Sofi home. From the orphanages of Eastern Europe, to the creature comforts of her new West Coast home, it’ll be quite the journey for little Sofi, but luckily, she has all of us to guide her steps along the way.

 

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It may take a village to raise a child, but it’ll take an even bigger village… to bring her home for good. 

–Love,

Laurita ♥

Your Journey: Who is Riding Shotgun?

Disclosure: This post contains affiliate links, which means that if you click on one of the product links, I’ll receive some compensation.

 

They say the journey is as important as, if not more important than, the destination. It sounds cliché, but you know what? I believe it.

As the new year kicks into full swing, I can’t help but reflect on how much has changed– and how much my life has changed– since springs past.

Spring is supposed to be a time of “renewal” and “change.” In reality, every season of every year can bring changes, good or bad.

Although I no longer have a designated spring break per sé, this past spring break was quite the memorable one, having been named one of La Prensa’s Mujeres Destacadas (Outstanding Women) in the Central Florida community earlier this month. I will be eternally grateful to those who have supported me, encouraged me, and advised me throughout the years. But I also need to take a moment to reflect on how I’ve managed to help myself, because personal growth has been such an important factor in the equation of my life.

Overwhelmed with joy at receiving the “Young Leader” award during La Prensa’s Mujeres Destacadas ceremony, alongside some pretty amazing women. The most amazing of all, Mami, is to my left. :)

 

If someone had told me five years ago that I was going to become a blogger, I would have laughed in their face. Hard. I didn’t think I knew how to “do the social media thing.” What I really wanted to be was a traditional journalist– in either  print or television broadcast media.

I remember in 2008, attending a ceremony for a journalism scholarship I received from the National Association of Hispanic Journalists. I couldn’t believe I had been selected for such an honor. It was completely unexpected. That trip to New York City in March proved to be one of the most memorable spring breaks of my life, as I shared that moment with my family.

Fast-forward to five years later. I have a lot more confidence than I used to at that time, and I realize now that people are often really seeing me, and not my spina bifida. To me, that is just amazing, after a lifetime of fighting to be seen and heard for my own merits, and not my physical traits.

 

Carrying a lovely floral arrangement during the NAHJ Scholarship Gala in 2008, in New York City.

 

That Saturday evening in March, when I stood up in shock to receive the Mujeres Destacadas award, I marveled at how it had all come to pass. As I looked around the room, I saw many faces I recognized, starting with my mother’s. My family has been with me through all the vacations, the road trips, the plane rides, and yes, many a spring break, whether here or elsewhere.

I realize now that it really doesn’t matter where you’re going, or what you’re actually doing on the journey. We each have our own personal journey, and what matters is who chooses to ride shotgun with you. 😉

 

 

**Disclosure: This post is sponsored by Britax (follow on Twitter) and I will be compensated. I am a member of the Britax Latina Advisory Board. All ideas and opinions are my own.

 

 

Help Keep a Hero Moving Forward

A few days ago, a longtime friend of mine, Julie Harley, reached out to me and told me about a contest she entered for her daughter, Ruby. Ruby has spina bifida. Ruby also has been diagnosed with autism.

As a mom, Julie spends a lot of time, energy, and love making sure Ruby and her sister have the best quality of life possible. I remember several years ago, the first time she contacted me through Twitter. She seemed like most of the fabulous moms I know– worried, anxious about the future, often frustrated with the lack of resources or knowledge in the community.

A precious moment between Julie and her daughter, Ruby.

 

Julie is not like most moms, though. She might be like most moms in the spina bifida community– strong-willed, determined, compassionate, and activist-minded. She also isn’t afraid to share even her family’s most vulnerable moments, in the hopes that their story will help others.

One of the greatest challenges Ruby went through recently was when she had to be on a strong antibiotic for an infection. As a result, the prolonged use of the antibiotic resulted in her contracting C-Diff, a dangerous infection that is very difficult to get rid of.

In addition to her daughter’s own challenges, Julie has struggled through back surgery and multiple knee surgeries, making it hard for her to lift 75-pound Ruby into their current van.

Now, she needs the support of her community– our community. She has entered to win a custom wheelchair-accessible vehicle so that she can continue giving beautiful little Ruby an amazing life!

Normally, I know I don’t write posts like these. But, I have come to care so strongly about the Harley family, as they are a true example of people who are always smiling, no matter what they’re going through. I have nothing but admiration for all of them!

And while Ruby is indeed the focus of this contest– the little heroine– there is no doubt in my mind that she inherits her courage and resilience from her incredible mom.

Please, take a moment to visit this link, and vote for Ruby. It won’t take up more than 30 seconds of your time, but it will be life-changing for Ruby and her family.

 

Love,

Laurita ♥

Britax B-READY Brightens the Fabric of Child Safety

Disclosure: This post contains affiliate links, which means that if you click on one of the product links, I’ll receive some compensation.

 

The first month of a new year generally ushers in the promise of great, significant changes. There’s an idealistic, staunch resolve to make the upcoming year better than the previous one.

The second month of a new year usually serves to prove the first month is a moot point, as a typical slacking-off ensues and the peak of enthusiasm and motivation of January eventually plummets and plateaus.

Not so for Britax, however. The child safety company has spent the start of 2013 hard at work on improving their products and making them better and more efficient.

 

A Britax B-READY stroller in Mossy Green, one of 3 new colors. 
 

To that end, Britax is also committed to making their products more fun, which is why they unveiled some new colors that their B-READY strollers are sporting this month. In addition to the colors that are already available, customers will also have three new shades of fabric to choose from:

  • Mossy Green (pictured above)
  • Slate Gray
  • Bright Copper

 

“Our fashion selection strategy involves more than just changing or mixing primary colors,” explains Michelle Davis, director of fashion design at BRITAX. “At BRITAX, we draw inspiration from fashion research, listen carefully to our customers, and then bring colors that appeal to a parent’s sense of style. Together, these three new colors complement our evolving, fashion-forward stroller line.”

But the “chic” strollers feature more than just a keen fashion sense. The B-READYs boast three key safety measures:

  • Foam-filled rubber tires
  • Four-point suspension
  • Can hold up to 55 pounds

These features will ensure that, whether it’s a 6-month-old or a mobile toddler that’s riding in their own set of wheels, baby will be cruising comfortably– and safely.

Perhaps safety is the one thing all parents can agree on, that never goes out of style.

 

–Laurita :)

 

**Disclosure: This post is sponsored by Britax (follow on Twitter) and I will be compensated. I am a member of the Britax Latina Advisory Board. All ideas and opinions are my own.