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Category Archives: Uncategorized
What’s in a Name? Labels Matter
Guest post by Marissa Meleske Marissa Meleske, 25, went to high school and did a semester of college before, as she puts it, “life got in the way.” While she pays off her student loans, she remains focused on obtaining … Continue reading
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What it’s All About: The Community
Every year for about the past 21 years, as a member of the Spina Bifida Association of Central Florida, I’ve been invited to their annual Christmas/holiday party. Since we just had our first Walk-N-Roll for Spina Bifida in October, the … Continue reading
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Speaking Out for a Rare Breed: World Rare Disease Day 2012
For over the past two years, I’ve poured my heart and soul out to my readers about how truly frustrating it is that, in spite of the 166,000 Americans living with spina bifida, and no doubt thousands more across the … Continue reading
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The Sky is Not the Limit!
Guest post by Gabriel Bonano Gabriel Bonano is 20 years old, and attended Orlando Tech, where he studied digital video production. In his spare time, he enjoys filming and editing videos, playing video games, hanging out with friends and playing … Continue reading
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Growing Pains: Dealing with Central Precocious Puberty
If you have a child with spina bifida who is in their early years, you might think (or hope!) that this will be the most challenging time for him/her. The fact of the matter is, each developmental stage of life … Continue reading
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Nothing Says “The Holidays” Like a Pre-Christmas Miralax Flush
Are you out of “original” Christmas gift ideas for those who have been in your life for a long time? Is a loved one stressing about “holiday season regularity”? Then, look no further for the perfect stocking– and stomach– stuffer! … Continue reading
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This Week’s Rundown: Complexes, Courage, and Community
Just this past weekend, I wrote a blog post about an issue that has haunted me my entire life. I wrote it in maybe 15 minutes flat– and then hesitated to press “publish.” Once I read it to Mami (who … Continue reading
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LATISM ’11 – The Recap (Part 2)
Don’t cry because it’s over; smile because it happened.” . . . Yesterday marked a week since my return from Chicago after attending the Latinos in Social Media 2011 (LATISM ’11) conference. I’ve had the good fortune of … Continue reading
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25 Years of Heroes, 25 Years of Growth
Everyone– philosophers, religious leaders, teachers, doctors, parents, grandparents– is always warning others to make the most of their lives. They caution against regret, and say that at the end of your life, you’ll regret the things you didn’t do, more … Continue reading
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LATISM’ 11 Recap Part 1 – The ¡WEPA! Echoes On…
Okay, so I know you are all probably waiting around for a much-needed update with details about what I did for 4 days in Chicago! But I’ve always been a believer in the adage “A picture’s worth a thousand words.” … Continue reading
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