Comments for Holdin' Out for a Hero http://www.holdinoutforahero.org Promoting Awareness of Spina Bifida, 1 Hero at a Time Fri, 17 Feb 2012 18:39:25 +0000 hourly 1 http://wordpress.org/?v=3.2.1 Comment on What’s in a Name? Labels Matter by Bren @ Flanboyant Eats™ http://www.holdinoutforahero.org/2012/02/whats-in-a-name-labels-matter/#comment-4300 Bren @ Flanboyant Eats™ Fri, 17 Feb 2012 18:39:25 +0000 http://www.holdinoutforahero.org/?p=13404#comment-4300 So emotive. Thanks for sharing your honest thoughts with us. Labels are just that. Nothing more. Some people are stuck on them, others recognize they're nothing more. I work with a group of differently abled children... when I heard that term to describe their amputations, I was thrilled! I loved that we weren't encouraged to say they "couldn't" do this or that. In fact, they were ABLE to do amazing things that my fully abled body isn't! Amazing, right! So emotive. Thanks for sharing your honest thoughts with us. Labels are just that. Nothing more. Some people are stuck on them, others recognize they’re nothing more. I work with a group of differently abled children… when I heard that term to describe their amputations, I was thrilled! I loved that we weren’t encouraged to say they “couldn’t” do this or that. In fact, they were ABLE to do amazing things that my fully abled body isn’t! Amazing, right!

]]> Comment on What’s in a Name? Labels Matter by Carla @ All of Me Now http://www.holdinoutforahero.org/2012/02/whats-in-a-name-labels-matter/#comment-4299 Carla @ All of Me Now Fri, 17 Feb 2012 14:51:51 +0000 http://www.holdinoutforahero.org/?p=13404#comment-4299 So inspiring! So inspiring!

]]> Comment on Speaking Out for a Rare Breed: World Rare Disease Day 2012 by Jessica http://www.holdinoutforahero.org/2012/01/10907/#comment-4297 Jessica Fri, 17 Feb 2012 06:10:02 +0000 http://www.holdinoutforahero.org/?p=10907#comment-4297 I found you via the rare disease blog hop. I LOVE your attitude. I too believe that God chose me specifically for my lot (a rare disease that affects only a few thousand worldwide and until relatively recently, was almost always entirely limited to children because of the limits it put on lifespan) and that I need to cherish what was given. You write beautifully and I can tell that you handle spina bifida with grace, even though I'm sure it doesn't feel like it. I wish you all the best as you continue on your journey. P.S. My blog is at http://rollerskatingwithrickets.com. The most recent post currently is one about rarity and beauty. I found you via the rare disease blog hop. I LOVE your attitude. I too believe that God chose me specifically for my lot (a rare disease that affects only a few thousand worldwide and until relatively recently, was almost always entirely limited to children because of the limits it put on lifespan) and that I need to cherish what was given. You write beautifully and I can tell that you handle spina bifida with grace, even though I’m sure it doesn’t feel like it. I wish you all the best as you continue on your journey.

P.S. My blog is at http://rollerskatingwithrickets.com. The most recent post currently is one about rarity and beauty.

]]> Comment on What’s in a Name? Labels Matter by Nicole@BoyOnARoll http://www.holdinoutforahero.org/2012/02/whats-in-a-name-labels-matter/#comment-4295 Nicole@BoyOnARoll Wed, 15 Feb 2012 22:54:42 +0000 http://www.holdinoutforahero.org/?p=13404#comment-4295 Great post! I have a 3.5 year old son with SB who just got his first wheelchair this past August. I aspire to have the same "you can do it" attitude with him as your parents did with you. He can do anything, wheelchair or not! Great post! I have a 3.5 year old son with SB who just got his first wheelchair this past August. I aspire to have the same “you can do it” attitude with him as your parents did with you. He can do anything, wheelchair or not!

]]> Comment on What’s in a Name? Labels Matter by Leslie Limon http://www.holdinoutforahero.org/2012/02/whats-in-a-name-labels-matter/#comment-4293 Leslie Limon Wed, 15 Feb 2012 05:14:25 +0000 http://www.holdinoutforahero.org/?p=13404#comment-4293 What a powerful and inspiring message! We should all be so lucky to have such wonderful parents as yours. What a powerful and inspiring message! We should all be so lucky to have such wonderful parents as yours.

]]> Comment on What it’s All About: The Community by Viviana Hurtado/The Wise Latina Club http://www.holdinoutforahero.org/2012/02/what-its-all-about-the-community/#comment-4292 Viviana Hurtado/The Wise Latina Club Tue, 14 Feb 2012 18:51:29 +0000 http://www.holdinoutforahero.org/?p=13366#comment-4292 You are so right to remind of us the true meaning of community. It's the people that open up a safe space for us to truly be ourselves with no judgement. From there we can grow and reach for the stars. You are so right to remind of us the true meaning of community. It’s the people that open up a safe space for us to truly be ourselves with no judgement. From there we can grow and reach for the stars.

]]> Comment on What’s in a Name? Labels Matter by What’s in a Name? Labels Matter | Faces of Spina Bifida http://www.holdinoutforahero.org/2012/02/whats-in-a-name-labels-matter/#comment-4290 What’s in a Name? Labels Matter | Faces of Spina Bifida Tue, 14 Feb 2012 15:21:22 +0000 http://www.holdinoutforahero.org/?p=13404#comment-4290 [...] Out for a Hero | Original Post Marissa Meleske, 25, went to high school and did a semester of college before, as she puts it, [...] [...] Out for a Hero | Original Post Marissa Meleske, 25, went to high school and did a semester of college before, as she puts it, [...]

]]> Comment on What’s in a Name? Labels Matter by Unknown Mami http://www.holdinoutforahero.org/2012/02/whats-in-a-name-labels-matter/#comment-4289 Unknown Mami Tue, 14 Feb 2012 03:52:19 +0000 http://www.holdinoutforahero.org/?p=13404#comment-4289 Well written and insightful. I wish all children had parents that believed in them and encouraged them regardless of their physical challenges. Well written and insightful. I wish all children had parents that believed in them and encouraged them regardless of their physical challenges.

]]> Comment on What it’s All About: The Community by Carla @ All of Me Now http://www.holdinoutforahero.org/2012/02/what-its-all-about-the-community/#comment-4287 Carla @ All of Me Now Mon, 13 Feb 2012 04:15:30 +0000 http://www.holdinoutforahero.org/?p=13366#comment-4287 Can I be a cheeseball and say this post made me all warm and fuzzy? It's such a wonderful thing when you find a person you can be yourself with. But a community of people? Well, that's just incredible. Looks like an amazing support system! Can I be a cheeseball and say this post made me all warm and fuzzy? It’s such a wonderful thing when you find a person you can be yourself with. But a community of people? Well, that’s just incredible. Looks like an amazing support system!

]]> Comment on What it’s All About: The Community by Sujeiry http://www.holdinoutforahero.org/2012/02/what-its-all-about-the-community/#comment-4286 Sujeiry Sun, 12 Feb 2012 22:00:24 +0000 http://www.holdinoutforahero.org/?p=13366#comment-4286 It is truly liberating to be ourselves. We usually are freer when we are around those who relate to us and have the same positive and supportive energy. Glad to see you had fun! It is truly liberating to be ourselves. We usually are freer when we are around those who relate to us and have the same positive and supportive energy. Glad to see you had fun!

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