• Spina Bifida Association of America (SBAA) : www.sbaa.org
• “1,000,000 Strong for ‘Holdin’ Out for a Hero’ Blog – our Facebook group! http://www.facebook.com/home.php?#/group.php?gid=122277394747
• The March of Dimes: www.marchofdimes.com
• Info about Vocational Rehabilitation Services: http://www.ed.gov/about/offices/list/osers/rsa/index.html
• The Hydrocephalus Association: http://www.hydroassoc.org/
• New Hope for Kids grants wishes to chronically ill children: http://www.newhopeforkids.org/
• SBAA en español: http://www.spinabifidaassociation.org/site/c.liKWL7PLLrF/b.2644859/k.639F/En_Espa241ol.htm
• Sophie’s Voice Foundation supports family outreach programs, prenatal education, and surgical studies for people with Spina Bifida: http://www.sophiesvoicefoundation.org/
• Centers for Disease Control and Prevention: http://www.cdc.gov/ncbddd/birthdefects/SpinaBifida.htm
• Camp Boggy Creek hosts free, year-round camp sessions for children with chronic illnesses, including 3 sessions per year for spina bifida: http://www.boggycreek.org/2006/home.asp
• The Cody Unser First Step Foundation, founded by the daughter of racing legend Al Unser, Jr., hopes to fight paralysis.   http://www.cufsf.org
• Rowan’s Development Story is an educational, moving and inspiring blog about Andrea and her daughter Rowan’s daily struggles with hydrocephalus, cerebral palsy and epilepsy. A must-read:  http://andreajunelleb.blogs.gabrielslife.org
• Spina Bifida Kids is an online forum for parents of kids with spina bifida: http://community.babycenter.com/groups/a3825/spina_bifida_kids
• Empowering Jews with Disabilities was founded by Marlee Kivens, who has spina bifida. http://www.empoweringjewswithdisabilities.org

*More to come! Be sure to E-mail me at: laurita.tellado@gmail.com to let me know what resources you need!