In Case You Are Jealous of My Friday Night

People often comment on my Facebook posts (especially fellow ladies!) saying what a fabulous life I have. They see me gliding from event to event, effortlessly, cozying up to public figures and instagramming delicious food (and coffee drinks)!

I don’t blame you all for commenting, or even feeling a twinge of jealousy or resentment. It’s natural, and to be completely honest, the same thing goes through my mind when I’m instagram- or Facebook-stalking my friends and colleagues.

But, do you want the brutally honest truth? Because here it is.

11223537_1032845593471332_6071060363305602142_n

There’s A LOT that gets filtered out of my life when I post on social media. Like, a hell of a lot. When I publish a photo of me in a gorgeous dress with my hair and makeup flawlessly done at an event enjoying the company of others, here’s what you don’t see:

You don’t see/hear the laughably-inevitable meltdown/pity-party two hours earlier about not being able to wear the shoes all my other girl peers are wearing (heels, stilettos, etc.).

You don’t see the panic attack I’m having as I’m rushing to make it out the door on time and have to stop and raid every drawer in the house for urinary catheters. Since they are delivered and I need a doctor’s prescription, it’s not like I can waltz into a public restroom with a few quarters and get a catheter out of a dispenser. (But you can easily find tampons or condoms, no doubt!)

You don’t see the frustration I feel when trying to find the perfect purse to match my outfit— that is, one that is sleek enough to carry easily but that will fit at least 5 catheters (because when your LIFE depends on using a plastic tube every three hours, there’s no room for guesstimating. Better to overestimate than…God forbid. And if I have an infection…forget it.)

You don’t see me up all night with indigestion because my digestive tract is much slower than everyone else’s. That expensive dinner I had cost me a good night’s sleep.

But most of all, you don’t see the struggle it is as I try my best to “fit in” (say what you will about being an individual, but don’t kid yourself— EVERYONE wants to fit in) while treading the delicate balance of staying “healthy” (whatever that means, because I haven’t felt “healthy” in many years) and being able to breathe easy and have some semblance of a social life.

That all being said, I know how truly fortunate I am. I have opportunities that many of my peers with spina bifida do not. I don’t lose sight of that.

But, today is Friday. Tonight, God willing, I actually am going out on a Friday night alone (a rare occurrence!) to attend a social / professional function. Just a while ago, I got off the phone after talking to my medical supply provider and my urologist’s office back-to-back. It feels like I am constantly having to negotiate how important a life-saving product is to me. Negotiate how many times a day I am allowed to pee. Can you imagine having your visits to the bathroom regulated? These are questions I actually get from my doctor’s office. (They will actually insist I drink more water, and then ask me why I use so many catheters!)

Not to mention my private medical insurance, which makes me jump through bureaucratic hoops just to be able to receive these bare necessities.

I don’t want to be calculating. I don’t want to be counting catheters. I don’t want to leave half of my meal untouched because I’m afraid of indigestion. I don’t want to walk into the place and immediately scan where the bathrooms are. I don’t want to wonder where I’ll park my wheelchair.

Tonight, I just want to act my age, and know that I’ve earned it. Tonight, I don’t just want to LIVE, I want to feel ALIVE, and know that my posts on social media actually reflect the fabulous reality.

Teachers Insurance Specialists Florida Caters To The Hearing-Impaired

 

Longwood, Florida (PRWEB) November 27, 2012–

The insurance agents at Teachers Insurance Specialists Florida announce the launch of their new Video Phone, phone number and the addition of their newest Florida insurance agent, Amber Evans.

Teachers Insurance Specialists can now cater to the hearing-impaired with the use of their new phone number (407-268-6364) and with Amber’s expertise in communicating with hearing-impaired individuals. Amber is fluent in sign language and is hearing-impaired herself.

“There are not many Florida insurance agencies that cater to the hearing-impaired. Insurance can get complicated. By offering a hearing impaired phone number and having an insurance agent on staff who can effectively communicate with those who are hearing-impaired, we can cater to this niche consumer,” says Simone Baldwin, Exclusive Agent/Owner of Teachers Insurance Specialists Florida.

Florida residents can rely on Teachers Insurance Specialists for their auto insurance, homeowners insurance, life insurance and retirement planning needs. Teachers Insurance Specialists Florida consults with clients over the phone and in person. Residents who are educators and non-educators throughout the State of Florida can seek insurance coverage with Teachers Insurance Specialists. For more information, please call 407-622-6634 or visit online at http://www.teachersinsurancespecialists.com

 

Disclosure: This is not a sponsored post. I was not compensated for publishing this post. All the wording and graphics were provided by Teachers Insurance Specialists. In short, I’m just helping to get the word out. Amber Evans is also a fellow member of the spina bifida community.